Entering the (NEIS)Void

I recently learned about the #NEISvoid on Twitter, a hashtag for people with chronic health problems and/or disabilities to post under. It stands for “No End In Sight” It's full of everything from venting about doctors (such as in my last post), mutual aid requests, and tips for managing chronic fatigue. I had seen the tag before, but up until now, I had never wondered what it stood for. I often saw it accompanying the DisabilityTwitter tag, which I occasionally use, so I assumed it had something to do with disability.

After writing the above section of this post, I took a break. I then got a call from my doctor, who ordered me a heart ultrasound and a heart monitor that I’ll need to wear for 24 hours. The soonest available appointment was January 4th, and for only the ultrasound. My heart monitor won’t be available until February. They can’t give me a date for when analysis of both of these will be done. It seems to be that I have officially entered the NEISvoid.

I’m hoping to fill my time I spend waiting on medical professionals with writing and art. I specifically want to be able to showcase the struggles we as disabled/chronically ill people go through.

Comments

IWSG February 2 Post

This is my second monthly post since joining the Insecure Writer's Support Group ! I love this community I've joined and the support it provides! The IWSG prompt this month was: "Is there someone who supported or influenced you that perhaps isn't around anymore? Anyone you miss?" My mind immediately goes to my fifth-grade teacher, and while she is still alive, and I've spoken to her many times since graduating the fifth grade, I won't be speaking to her anymore. Unfortunately, my identity as a nonbinary person with leftist political ideals is...quite the opposite of anything she'd approve of associating herself with, to put it nicely. So, while still "around" in the "alive" sense, she is no longer "around" in my life. I want to say that I miss her, miss what was taught to me when I was 10 years old, but, looking back, everything she taught me was clouded with that ultra-conservative cloud, everything was about her po...

Queer AND in Love? In this Economy???

Someone recently asked me if I've ever been in love. "Twice," I responded. I lied. It had been three times, but I don't like talking or even thinking, about the second time. [sitting down to write this, I realize I still can't talk about it.] Coming back to this weeks later, I've decided that that second time doesn't count. I was manipulated, and I can't say much else. I don't want to anyway. I am only coming back to this post to talk about my most recent journey towards love. I've always been the one to say it first, and recently, it's been refreshing to hear my partner say it to me. I was relieved, I had wanted to say it for a while, but was afraid it was too soon, I didn't want to scare them off. Hell, I was a little scared myself of how fast I had fallen for them, but it sure felt amazing. I'm a hopeless romantic, and also a hopeless R omantic. Maybe I'm just in love with being in love, but either way, I'm happy with my ...

A Little Health Update

In case you haven't read about my recent medical issues regarding my metabolic levels, you can here . Yesterday, I was finally able to get in for a heart ultrasound. Everything came back perfectly normal, which was both frustrating and a relief. The low potassium levels I've been experiencing haven't done any lasting damage to my heart, but we still have no idea why I'm still having intense chest pain and palpitations. I almost wish that something small did show up just so I could get some answers. I feel awful saying that, but I'm just so frustrated with the lack of options for me right now and want this to be solved. Luckily, there's still hope that they can figure something out from the heart monitor I'll wear for 24 hours. Unfortunately, I'm not able to get one until February, so we'll see if the issue has solved itself by then and I'm just wasting money ( ah, the American healthcare system, don't you love it? ). The fatigue has been rou...

The Musings of Morgan Rie

Search This Blog